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Bec Young

Rebecca 'Bec' Young is a research assistant on the Early Neurodevelopment and Mental Health team at The Kids Research Institute Australia.

National Vaccines Platform – First Nations Community Advisory group

Telethon Kids Institute is leading the development of a National Vaccine Platform for conducting trials to improve protection from diseases that can prevented with vaccines. We are seeking Aboriginal and/or Torres Strait Islanders to join our new First Nations Vaccines Community Advisory Group.

Wendy

  Wendy Mum of two kids, Joshua and Julia. ORIGINS project member and trial participant.          I discovered that my son was allergic to nuts.

Evelyn

  Evelyn Age 18. Youth advocate, volunteer.             Research is what leads to change. It presents countless possibilities for discoveries -

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

News & Events

Families shape future of Down syndrome care

A collaborative study between UWA, Perth Children’s Hospital, The Kids and advocacy and support group Down Syndrome WA, has identified the top priorities, according to patients and carers, for clinical care and research for children with the genetic cond

News & Events

Major grants fuel child health research

Six researchers from The Kids Research Institute Australia have been awarded $8.9 million in prestigious Investigator Grants from the National Health and Medical Research Council.