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Predictors of scoliosis in Rett syndrome

Using information provided by the Rett study, we looked at relationships of early development, genetic characteristics and the development of scoliosis.

About Rett syndrome

Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.

Why get active?

Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.

News & Events

3rd European Rett Syndrome Conference, October 17-19, Maastricht, The Netherlands

Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.

News & Events

MECP2 duplication syndrome in the news

Our own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...

Ruby

  Ruby Age 16. Youth advocate, project community member.            Research is important, it provides evidence for care and treatment. Without

Maddie

  Maddie Age 20. Trial participant, project community member, volunteer.            Without input from the community, we can't see how our research

Scott

  Scott Dad of two, Riley and Georgia. Project community member.            Any contribution I can make through community involvement at the

News & Events

The Kids STEM Festival returns for two days of free family fun in Broome

The Kids Research Institute Australia will return to the Kimberley in May for the Broome STEM Festival, promising two fun-filled days of hands-on science activities for local families to experience.

News & Events

New study uncovers dual benefit of bone-protecting treatment for childhood leukaemia

A groundbreaking study from cancer researchers at The Kids Research Institute Australia has identified a promising new therapeutic strategy for children battling the most common childhood cancer – B-cell acute lymphoblastic leukaemia.