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Using information provided by the Rett study, we looked at relationships of early development, genetic characteristics and the development of scoliosis.

Rett syndrome is one of the 8,000 rare genetic diseases that collectively affect up to 10% of the population.

Anyone who engages in physical activity, regardless of how much they do, can achieve mental, physical and social health benefits, resulting in benefits to their quality of life.

News & Events
3rd European Rett Syndrome Conference, October 17-19, Maastricht, The NetherlandsFollowing last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.

News & Events
MECP2 duplication syndrome in the newsOur own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...

Ruby Age 16. Youth advocate, project community member. Research is important, it provides evidence for care and treatment. Without

Maddie Age 20. Trial participant, project community member, volunteer. Without input from the community, we can't see how our research

Scott Dad of two, Riley and Georgia. Project community member. Any contribution I can make through community involvement at the

News & Events
The Kids STEM Festival returns for two days of free family fun in BroomeThe Kids Research Institute Australia will return to the Kimberley in May for the Broome STEM Festival, promising two fun-filled days of hands-on science activities for local families to experience.

News & Events
New study uncovers dual benefit of bone-protecting treatment for childhood leukaemiaA groundbreaking study from cancer researchers at The Kids Research Institute Australia has identified a promising new therapeutic strategy for children battling the most common childhood cancer – B-cell acute lymphoblastic leukaemia.