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Embrace the potential of children with Rett Syndrome by exploring how to plan opportunities for uptime, maximizing their engagement and participation in meaningful activities.
Our research team have done 4 studies to find out how to increase activity in children and adults with Rett syndrome.
AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians
Research
Genome-wide DNA methylation profiling identifies a folate-sensitive region of differential methylation upstream of ZFP57-imprinting regulator in humansThis study identified that expsoure to folate has effects on the regulation of DNA methylation during fetal development.
The WAACHS regional profiles look at all four volumes of results across the ATSIC regions of Western Australia.
The NATSISPEP will formally evaluate a range of existing Indigenous suicide prevention programs and services to develop an evidence base for 'what works'.
The social and emotional wellbeing of Aboriginal children and young people
Research
Diverse diagnostic and management approaches for acute rheumatic fever in Australia and New Zealand: findings of a prospective clinical studyThis study provides new knowledge on ARF characteristics and management and highlights international variation in diagnostic and management practice.
Research
Loneliness and Emotional and Externalizing Problems in Early Adolescence: Moderating and Mediating Effects of Coping SkillsLoneliness is an unavoidable facet of human existence. When chronic and intense, adolescent loneliness is associated with maladjustment over time. A prospective multiple-cohort study examined the links between child-reported loneliness and coping skills and parent-rated child mental health in early adolescence, with a total of 266 students from 75 primary and 152 secondary schools.