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We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

Time to reflect After your leadership team has completed an activity it is important to take time to reflect on how it went and things you may have

Cybersafe practices are precautions we can take to make sure our interactions online are safe and positive. Download the "My Online Status" in the

The Health Promotion and Education Research Team at The Kids Research Institute Australia received funding from the auDA Foundation to develop this

The END RHD CRE focuses priority research projects that will help achieve the singular target of producing the Endgame Strategy.

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After being diagnosed with rheumatic heart disease at ten, Elizabeth had to leave country and her family for a large chunk of her childhood so she could be treated in Adelaide.

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Occupational Therapist