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Rett syndrome and Related Disorders

In this The Kids Research Institute Australia subsite, our Rett syndrome research team manages a national and international database of Rett syndrome.

Research enriching the lives of girls with Rett syndrome

A program developed by The Kids Research Institute Australia researcher Dr Jenny Downs has led to dramatic improvements in the functioning of Chinese children with Rett syndrome, and could change the world.

News and events

Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.

Child Disability

Improving the lives of children with a disability and their families sits at the core of our team.

Developmental Coordination Disorder

Developmental Coordination Disorder is a lifelong disability impacting most aspects of daily living that involve movement. With an estimated prevalence of ~5% of children, the disorder affects an average of one to two children in every Australian classroom.

New book gives voice to kids with DCD

Two The Kids Research Institute Australia researchers behind a new book featuring the voices of Kids with DCD.

Investigating the impact of developmental coordination difficulties across home, school, and community settings: Findings from the Australian Impact for DCD survey

To evaluate the participation difficulties experienced by children with developmental coordination disorder in home, school, and community environments.  

New research reveals impact of little-known disorder

A new report released by The Kids Research Institute Australia in collaboration with Victoria University has revealed the significant social and emotional toll of Developmental Coordination Disorder (DCD).