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News & Events

Former West Australian Treasurer, Hon Ben Wyatt, has accepted a position on the Board of WA’s leading medical research organisation, The Kids Research Institute Australia.

News & Events

Plenty of parents will tell you the daily lunchbox dilemma is one thing they did not miss during the summer holidays – which stretched even longer due to WA’s hard lockdown.

Publications from 2017 dating back to 2004 of CDKL5 researchers.

We aim to share our research findings with families so that they may better understand Rett syndrome and the future for their family.

We interviewed 17 parents with a daughter with Rett syndrome to gain their perspectives on how their daughter communicates and barriers.

For this study, we examined how Rett syndrome characteristics can be affected by X-inactivation for 2 of the common types of mutation - p.R168X and p.T158M.

We set out to describe the feeding difficulties and nutrition of girls with Rett syndrome and to examine what factors may be influencing their nutrition.

Therefore, we used video data to examine changes in hand function over time. We also investigated what other factors might influence these changes.

Discover a comprehensive guide on equipment designed to empower physical activity in children with Rett Syndrome, promoting their well-being and development.

News & Events

Our AussieRett team recently visited Melbourne, Australia for the IASSIDD 15th World Congress.