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Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

News & Events

January school holiday workshops

The The Kids School Holiday Workshops are back on this January holidays with a bigger and bolder program of fun and educational workshop for kids!

Let’s Get Active!

Discover resources and science activities for kids for the topic 'Let's Get Active!'.

News & Events

Free excursions to The Kids

Register your interest to participate in a FREE pilot excursion for our brand-new program, Microscopic World!

News & Events

Discovery Centre lightens the load for hospital families

The opening of the Discovery Centre has made trips to Perth Children's Hospital much more enjoyable for mum Alianna Celisano and her three boys.

Port Hedland – Kumaparniku Wraparound Services Research Collaboration

Early in the consultation phase of the project, local Elders through Hedland Aboriginal Strong Leaders, education representatives and others identified that vulnerable families needed help navigating and accessing local support services that were already available in Port Hedland.

A life of caring and a passion to give - local legend Harvey Coates

Over 20 years Professor Harvey Oates has made financial contributions to The Kids totaling over 6 figures, as well as sitting on the board for 16 years.