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News & Events

A virus all pregnant women should know about

Most mums-to-be have never heard of CMV and the impact it can have on their unborn baby.

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Detention is no place for any child

The Kids Research Institute Australia is supporting calls for the urgent release of Biloela family from held detention.

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Keeping your kids moving during WA’s hard lockdown

Western Australia’s sudden hard lockdown came without warning and unlike when COVID-19 first kept us at home last year, there are now rules on how long we can spend exercising outside.

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Back to school anxiety: How to help your child transition into the new school year

It is natural for children to feel anxious about what a new school year will bring. Here's how to help make the first days and weeks easier on your child and the whole family.

News & Events

Parent of a year 7 student? Why now is the best time to talk to your child about drinking

Year 7 is a time of big change and challenges - and it's also the best time to start talking about alcohol.

About

Rett syndrome is a rare but serious neurological disorder that affects about 1 in 9,000 girls. Even more rarely, boys may be affected.

Behavior and mutation type

We also wanted to find out whether any particular behaviours were associated with any specific mutation types.

A validation study of a modified Bouchard activity record

We compared parent/carer-reported physical activities with the number of steps counted by an accelerometer in girls and women with Rett syndrome.

Physical and mental health of mothers caring for a child with Rett syndrome

We wanted to find out whether mothers with a child with Rett syndrome who were more physically and mentally healthy had particular characteristics.

Family satisfaction following spinal fusion in Rett syndrome: a cohort study

This study evaluated sixty-one families' satisfaction following spinal fusion in girls with Rett syndrome.