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A program developed by The Kids Research Institute Australia researcher Dr Jenny Downs has led to dramatic improvements in the functioning of Chinese children with Rett syndrome, and could change the world.
Discover the news and events of the Rett syndrome and related disorders team, and find out what the team is working on in the fields of children disorders.
In this The Kids Research Institute Australia subsite, our Rett syndrome research team manages a national and international database of Rett syndrome.
These project websites display extended detailed information about specific research areas.
At The Kids, our vision is simple - happy healthy kids. Our goal is to make a real difference in our community to benefit children and families everywhere. Our values underpin the way we work and make decisions: collaboration, courage, evidence, respect.
We know from research that the risk of death from respiratory disease is 14 times higher for adults with cerebral palsy than for other adults. Respiratory disease is the most common cause of premature death in children and young people with cerebral palsy and one of the main causes of hospitalisation.
Senior Research Officer
ORIGINS has officially reached the study's five-year goal of recruiting 4,000 active participants to the project and has closed recruitment of new families into the active cohort.
By participating in ORIGINS, you are contributing to one of the largest and most comprehensive birth cohort studies ever.
Senior Research Fellow