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We have recently developed recommendations to support clinical practice for gastro-intestinal disorders including growth and scoliosis in Rett syndrome.
The ARSS has a Consumer Reference Group to ensure family representation and input into issues relating to the design, management and output of the study.
Our AussieRett team recently visited Melbourne, Australia for the IASSIDD 15th World Congress.
Our InterRett team visited Geelong, Australia to attend the first ever Rett Syndrome Association of Australia national conference.
Thank you to all guests and participants of this year's 8th World Congress on Rett syndrome, which was held from May 13-17th, 2016 in Kazan, Russia.
Participate in our CDKL5 research to help advance research outcomes in the CDKL5 research field by our children's health specialist researchers.
You can't stop loving them: the gift of a grandchild can sometimes be painful, writes Wendy Macklin.
On Sunday May 25th, the 'I love someone with Rett syndrome' team participated in the annual HBF Run for a Reason.
Our own Dr Helen Leonard was recently featured on Today Tonight. MECP2 duplication syndrome, which more frequently affects boys, is one of the Rett syndrome...
Following last year's World Rett Syndrome Congress held in New Orleans, the 3rd European Rett Syndrome Conference was held in the Netherlands over 3 days.