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Rural Cancer Siblings
We want to hear from siblings living outside of Australian cities!
Sibling Support and Teen Talk Studies
Sibling Support and Teen Talk Studies form
Infographics
The visual representation of Teen Talk study findings
Professor Helen Leonard
Principal Research Fellow
Daniel Ta
PhD Candidate
Surfacing undiagnosed disease: consideration, counting and coding
The diagnostic odyssey for people living with rare diseases (PLWRD) is often prolonged for myriad reasons including an initial failure to consider rare disease and challenges to systemically and systematically identifying and tracking undiagnosed diseases across the diagnostic journey.
Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience
Siblings of children with intellectual disability have unique family experiences, varying by type of disability.