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Child Disability

Improving the lives of children with a disability and their families sits at the core of our team.

Around 1 in 10 children have a disability that impacts on their ability to function in the same way as other children.

Sometimes they are born with these disabilities, sometimes they develop after birth, and sometimes they are caused by illness or injury. There are many types of disability, including intellectual, neurological, physical, sensory, and psychological, which can influence how the child thinks, behaves, and develops skills.

Disabilities can create many barriers for children and their families, which can significantly alter their quality of life.

Our vision is that all children impacted by disability and their families will live their best lives. We will support this vision by conducting an evidence- and consumer-informed program of research, underpinned by excellence in study design, analysis, and reporting.

To achieve this vision, we will:

  1. Engage with children with disability and their families across all walks of life to better understand their needs,
  2. Prevent or reduce disability and ensure that our research helps support meaningful and impactful changes,
  3. Engage key stakeholders to improve access to services and influence policy and practice.
  4. Collaborate with the community, health professionals, service providers, researchers, and policy makers.

Team leader

Professor Jenny Downs
Professor Jenny Downs

BApplSci (physio) MSc PhD

Head, Child Disability

Team members (16)

Dr Emma Glasson
Dr Emma Glasson

BPsych BSc (Hons) PhD

Senior Research Fellow

Senior Research Officer

Jacinta Saldaris
Jacinta Saldaris

BSc (Hons), PhD

Senior Research Officer, Child Disability

Kate Dorozenko
Kate Dorozenko

B Psych (First Class Honours), PhD (Psychology)

Senior Research Officer

Senior Research Fellow

Jess Keeley
Jess Keeley

BPsych(Hons), PhD (Psychology)

Research Officer

Peter Jacoby
Peter Jacoby

BA (Hons) MSc

Biostatistician

Clinical Associate Professor Raewyn Mutch
Clinical Associate Professor Raewyn Mutch

MBChB., DipRACOG., Cert.HPRT, FRACP., PhD

Research Officer

Carolyn Drummond
Carolyn Drummond

B. App Sci (Physio.)

Research Officer

Mohammed Junaid
Mohammed Junaid

BDS, MDS, MFDS RCPS (Glasg.), DDPH RCS (Eng)

Honorary Team Member

Dr Kingsley Wong
Dr Kingsley Wong

MBBS, MPH, MMedStat

Research Officer

Caitlin Gray
Caitlin Gray

BPsych MPH PhD

Research Assistant and Student

Child Disability projects

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Featured projects

IDEA (Intellectual Disability Exploring Answers) Database

IDEA is one of the few population-based resources in the world dedicated to intellectual disability. The IDEA database contains information on all children born in Western Australia since 1983 who have been identified with having an intellectual disability. Individuals with autism spectrum disorder, both with and without intellectual disability, are also included in the database. Deidentified information is accessed from the Department of Communities WA, the WA Department of Education, and the National Disability Insurance Agency (NDIA) to create the database. IDEA can be linked to other datasets to facilitate research into the determinants, outcomes and service needs of children and adults with intellectual disability. Researchers can apply for such linked data, available in a de-identified format under approval from an ethics committee.

Codesign and knowledge translation of the Strength-based, Tiered, Accessible Resources and Supports (STARS) for Kids study to identify and support child development

Many children and their families, especially those from priority populations, experience barriers to accessing high-quality early childhood health, education, social and legal services. Further, these families are often under-represented in service planning and research; hence innovations are not designed to meet their needs. Our aim is to codesign with families and the wider community, a Strength-based, Tiered, Accessible Resources and Supports for Kids (STARS for Kids) programme to optimise child development, parental mental well-being, and family psychosocial needs in the first 2000 days from pregnancy to start of school

Well-being and support preferences of siblings of individuals with a neurodevelopmental condition in regional and remote Australia: a mixed methods investigation

This convergent parallel mixed methods study examined the role of protective factors (resilience, family functioning, and social support) in explaining sibling well-being, alongside this population's support preferences and experiences. 

Nonvital Pulp Therapy in Primary Teeth Using Mineral Trioxide Aggregate Obturation: A Retrospective Case Series

Nonvital pulp therapy is a treatment option that can preserve pathologically affected primary teeth and contribute to space maintenance. This retrospective case series examined the healing effects in infected primary teeth after pulpectomy using mineral trioxide aggregate obturation and eruption characteristics of the succedaneous teeth. 

Exploring sleep challenges in CDKL5 Deficiency Disorder

Sleep disturbance is a common and significant issue for individuals with CDKL5 Deficiency Disorder (CDD) and their families. The study aimed to investigate experiences of sleep disturbance in CDD and associated factors.

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