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Research

Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndrome

This study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic...

Research

A new method of prenatal alcohol classification accounting for dose, pattern and timing of exposure:

When examining the association between prenatal alcohol exposure and fetal effects, the timing and intensity of exposure have been ignored in epidemiological st

Research

Determinants of prenatal alcohol exposure among Aboriginal women in the Pilbara: Developing a statistically validated model of prenatal alcohol consumption for evidence based intervention development

Investigators: Dave Tucker (PhD candidate), Associate Professor Roz Walker, Dr Martyn Symonds, Dr Nyanda McBride The overarching aim of the proposed

Research

Fetal alcohol exposure, nutritional status and epigenetic disruption – exploring the links

David Martyn Martino Symons BSc PhD B.A. (Hons) PhD. Head, Clinical Epigenetics Honorary Research Associate 08 6319 1672 David.Martino@thekids.org.au

Research

Making FASD History: A multi-site prevention program

Investigators: Elizabeth Connor, James Fitzpatrick, Rebecca Pedruzzi Project partners: Central Australian Aboriginal Congress, Mercy Services,

Research

Working towards a shared framework in the diagnosis of neurodevelopmental disorders in Australia: A Gap Analysis

Amy Andrew Carol Jacinta Videos Finlay-Jones Whitehouse Watch and listen to Andrew Bower Freeman BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (

Research

Exploring offending characteristics of young people with foetal alcohol spectrum disorder in Western Australia

Neurodevelopmental impairments resulting from Foetal Alcohol Spectrum Disorder (FASD) can increase the likelihood of justice system involvement. This study compared offence characteristics in young people with FASD to demographically matched controls (n = 500) in Western Australia.

Research

The orofacial, oromotor, speech, and voice characteristics of adolescents in youth detention: a comparison of groups with and without prenatal alcohol exposure

Language disorder is highly prevalent in youth justice; however, orofacial, oromotor, speech, and voice anomalies have been largely overlooked. There has been some documentation of these among individuals with prenatal alcohol exposure (PAE), and adolescents with PAE are over-represented in youth justice.

Research

Navigating complexity to support justice-involved youth with FASD and other neurodevelopmental disabilities: needs and challenges of a regional workforce

Young people with Fetal Alcohol Spectrum Disorder (FASD) can face significant challenges in their lives, including overrepresentation in the justice system from a young age. Police questioning and court proceedings can be difficult for these young people to navigate. Practice and policy responses are necessary to identify these individuals, provide appropriate support/rehabilitation, and upskill the justice workforce. The aim of this research was to determine the unmet workforce development needs of a regional workforce providing care and support to youth involved with the justice system.