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The diagnosis of autism in a female: could it be Rett syndrome?

We compared the symptoms and genetic characteristics of girls with Rett syndrome and both with and without initial diagnosis of autism.

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Urinary Ferritin as a Non-Invasive Means of Assessing Iron Status in Young Children

Exploring whether urinary ferritin can be used as an alternative biomarker for measuring iron status in young children over blood draws.

New Study: Understanding caregiver experiences for caring for a young child with T1D

We know that caring for a child with type 1 diabetes (T1D) can be incredibly challenging. We also know that caregivers of children with T1D experience high levels of distress and anxiety. We are looking to better understand what this experience is like for caregivers so that we can identify

New research shows sports gambling a ‘gateway’ for young men into gambling problems

Sport and fantasy sport gambling can lead to a higher risk of problem gambling behaviour in young men, new research has found.

New artwork a visual representation of cultural safety at Peel CAMHS

Attendees of the Peel CAMHS clinic will be captivated by a new artwork donated following our recent Dandjoo Kooliny event.

A mission to make home safer for kids with cystic fibrosis

Dr Kak-Ming Ling, a Wal-yan Respiratory researcher at the Kids Research Institute Australia, has been awarded a $25,000 Illuminate Award for her work to change that. Supported by Conquer Cystic Fibrosis, the award was presented at the 2026 Illuminate PitchFest hosted by The Kids.