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Coping, hoping and helping - A mother and father's response to cystic fibrosis

At 6 weeks old David was diagnosed as having cystic fibrosis. His parents say that his involvement in research offers them their greatest hope for his future.

Urinary Ferritin as a Non-Invasive Means of Assessing Iron Status in Young Children

Exploring whether urinary ferritin can be used as an alternative biomarker for measuring iron status in young children over blood draws.

New Study: Understanding caregiver experiences for caring for a young child with T1D

We know that caring for a child with type 1 diabetes (T1D) can be incredibly challenging. We also know that caregivers of children with T1D experience high levels of distress and anxiety. We are looking to better understand what this experience is like for caregivers so that we can identify

How listening to our kids could help Australia get a move on

The Kids Research Institute Australia researchers are urging governments to listen more to what kids need.

Saying yes to newborn trial a life-changing piece of luck

When Perth mum Lacy Swan’s daughter Charlotte failed the newborn hearing test at 3 days of age, the medical team explained it could simply be due to fluid on the ears.

Don’t stop her now – Gina’s having a ball

Despite the risk of having a hypo (low blood glucose levels), Gina said she refused to let T1D stop her from exercising.

The bonus feature giving ORIGINS participants a head start on health issues

The ORIGINS Project, a collaboration between The Kids and Joondalup Health Campus, is collecting data and biological samples from 10,000 families over 10 years. Its work is also giving participating families a valuable heads up on health issues.

Spitz Melanoma of Childhood With A Novel Promoter Hijacking Anaplastic Lymphoma Kinase (C2orf42-ALK) Rearrangement

We present the case of a prepubescent man of African descent who developed a spitzoid melanocytic proliferation showing evidence of a novel promoter hijacking ALK-C2orf42 rearrangement, with atypical histology, clinically apparent metastatic disease, and abnormal cytogenetic findings, representing a rare genuine case of "Spitz melanoma of childhood."