Reports and Findings
Research
Down syndrome studies; the transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their familiesHelen Jenny Keely Leonard Downs Bebbington MBChB MPH BApplSci (physio) MSc PhD MClinPsych/PhD Principal Research Fellow Program Head, Development and Disability McCusker Postdoctoral Research Fellow in Type 1 Diabetes +61 419 956 946 08 6319 1763
Research
Down Syndrome Clinical Trial- BTD-001Helen Jenny Peter Leonard Downs Richmond MBChB MPH BApplSci (physio) MSc PhD MBBS MRCP(UK) FRACP Principal Research Fellow Program Head, Development and Disability Head, Vaccine Trials Group +61 419 956 946 08 6319 1763 helen.leonard@
Research
Does gastrostomy improve the lives of children with severe disability and their families?Approximately 13,000 children in Australia live with moderate to severe intellectual disability.
Research
Determinants and Outcomes of Preterm Birth & Pathways into Developmental DisordersBrad Carrington Fiona Farrant Shepherd Stanley BSc (Hons), PhD PhD FAA FASSA MSc MD FFPHM FAFPHM FRACP FRANZCOG HonDSc HonDUniv HonFRACGP HonMD HonFRCPCH HonLLB (honoris causa) Co-Head, Aboriginal Health and Wellbeing Honorary Research Associate
Research
Characterising quality of life and its determinants for children with intellectual disability and their familiesAndrew Helen Jenny Nada Peter Videos Whitehouse Watch and listen to Andrew Leonard Downs Murphy Jacoby PhD MBChB MPH BApplSci (physio) MSc PhD MAPP BA (Hons) MSc Angela Wright Bennett Professor of Autism Research at The Kids Research Institute
Research
A process and impact evaluation of use of a Powered Wheelchair Standing Device by boys with Duchenne muscular dystrophyGraham Jenny Peter Hall Downs Jacoby BAppSci PhD CRFS FANZSRS FThorSoc FERS BApplSci (physio) MSc PhD BA (Hons) MSc Honorary Research Associate Program Head, Development and Disability Biostatistician 08 6319 1763 Jenny.Downs@telethonkids.org.au
Research
YoDA-F (Youth Depression Alleviation – Fish Oil)Investigators: Ashleigh Lin, Charlotte Pugh, Matthew Poh Anti-depressant medication is not always an effective treatment for young people with depression. There is growing evidence that long-chain omega-3 polyunsaturated fatty acids (""fish oil"")
Research
Sport in First-episode PsychosisYael Perry BPsych (Hons) MPsych (Clin) PhD Program Head, Mental Health & Youth; Head, Youth Mental Health 08 6319 1298 yael.perry@telethonkids.org.au Program Head, Mental Health & Youth; Head, Youth Mental Health @yaelperry she/her/hers A/Prof Yael
Research
SPARX-T: An online game to prevent depression in trans young peopleYael Penelope Helen Holly Perry Strauss Morgan Moss BPsych (Hons) MPsych (Clin) PhD BA, MPH, PhD BA (Hons), Doctor of Psychology BEd Program Head, Mental Health & Youth; Head, Youth Mental Health Research Fellow in Youth Suicide Prevention Senior
Research
Resilience and Diabetes 2 (the RAD2 study)Anna Hunt DipTch, BEd Research Administrator 08 6319 1290 Anna.Hunt@telethonkids.org.au Research Administrator she/her/hers Anna Hunt is a Research Administrator with the Youth Mental Health team. Anna’s background is in teaching. She completed a