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The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review

Siblings of children with neurodevelopmental conditions have unique experiences and challenges related to their sibling role. Some develop mental health concerns as measured by self-reported surveys or parent report. Few data are available at the population level, owing to difficulties capturing wide-scale health data for siblings. Data linkage is a technique that can facilitate such research. 

Citation:
Gray C, Leonard H, Cooper MN, Rai D, Glasson EJ. The application of population data linkage to capture sibling health outcomes among children and young adults with neurodevelopmental conditions. A scoping review. Int J Popul Data Sci. 2025;10(1).

Keywords:
Neurodevelopment; data linkage; health outcomes; population-level; scoping review; siblings

Abstract:
Siblings of children with neurodevelopmental conditions have unique experiences and challenges related to their sibling role. Some develop mental health concerns as measured by self-reported surveys or parent report. Few data are available at the population level, owing to difficulties capturing wide-scale health data for siblings. Data linkage is a technique that can facilitate such research.