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“We Need Community-Centred, Strongly Ethical Genetic Research”: A Qualitative Investigation of Community Attitudes Toward Autism Genetics

Autism genetics has historically attracted a substantial proportion of autism research funding internationally. However, more recently, several controversies centered on ethical conduct and lack of community consultation have emerged. This has triggered Autistic-led protests for the functional and meaningful inclusion of Autistic voices in the research design.

Citation:
Pugsley K, Siryj N, Alvares GA, Baxter E, Bellgrove MA, et al. “We Need Community-Centred, Strongly Ethical Genetic Research”: A Qualitative Investigation of Community Attitudes Toward Autism Genetics. Autism Adulthood. 2025

Keywords:
Autism spectrum disorder; Biomedical science, research and development; Medicine, Surgery & Diagnosis; Mental disorders; Nervous system diseases; Neurodevelopmental disorders

Abstract:
Autism genetics has historically attracted a substantial proportion of autism research funding internationally. However, more recently, several controversies centered on ethical conduct and lack of community consultation have emerged. This has triggered Autistic-led protests for the functional and meaningful inclusion of Autistic voices in the research design.