Common data elements to standardize genomics studies in cerebral palsy

To define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.

Citation:
Wilson YA, Smithers-Sheedy H, ……… Baynam G, et al. Common data elements to standardize genomics studies in cerebral palsy. Dev Med Child Neurol. 2022.

Keywords:
Cerebral palsy; child disability; genomics; mandaory data sets; Delphi survey

Abstract:
To define clinical common data elements (CDEs) and a mandatory minimum data set (MDS) for genomic studies of cerebral palsy (CP). Method: Candidate data elements were collated following a review of the literature and existing CDEs.