The psychosocial impact of rare diseases among children and adolescents attending mainstream schools in Western Australia

Living with a long-term medical condition is associated with heightened risk for mental health and psychosocial difficulties, but further research is required on this risk for children and adolescents with a rare disease in the educational setting. The aim of this study is to describe parents’ perceptions of the psychosocial impact of rare diseases on their school-aged children in Western Australia.

Citation:
Adama EA, Arabiat D, Foster MJ, Afrifa-Yamoah E, Runions K, Vithiatharan R, Lin A. et al. The psychosocial impact of rare diseases among children and adolescents attending mainstream schools in Western Australia. Int J Inclusive Educ. 2021:1-14.

Keywords:
Adolescent; bullying; children; education; mental health; rare diseases; school; stigma

Abstract:
Living with a long-term medical condition is associated with heightened risk for mental health and psychosocial difficulties, but further research is required on this risk for children and adolescents with a rare disease in the educational setting. The aim of this study is to describe parents’ perceptions of the psychosocial impact of rare diseases on their school-aged children in Western Australia.