Rare childhood diseases: how should we respond?

Paradoxically, rare diseases are common, collectively affecting 6-10% of the population and have a huge impact on patients and families, health services,...

Authors:
Zurynski Y, Frith K, Leonard H, Elliott E

Authors notes:
Archives of Disease in Childhood. 2008; 93(12):1071-1074

Keywords:
rare diseases are common, collectively affecting 6-10% of the population, huge impact, patients, families, health services, clinicians, wider community

Abstract:
Paradoxically, rare diseases are common, collectively affecting 6-10% of the population and have a huge impact on patients and families, health services, clinicians and the wider community.