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Pandemic pivot keeps vital skin program alive

StoP artwork.jpg

“Gathering Circles” by Luke Riches

 

The unique circumstances that upended 2020 for so many brought both challenge and opportunity for members of the SToP (See, Treat, Prevent skin sores and scabies) Trial team working with remote Aboriginal communities across the Kimberley.

Faced with a global pandemic, the prospect of COVID-19 spreading to remote communities, and the reality of the high chronic disease burden experienced by remote living Aboriginal people in the Kimberley region, Aboriginal leaders recommended all non-essential visiting services to remote communities, including The Kids research, cease.

The decision could have brought vital research occurring across the Kimberley to a halt, but building on already established relationships, the SToP Trial team instead pivoted – using virtual technology to continue priority health promotion activities and engage with partners they were no longer able to visit in person.

“The SToP Trial team has been working with nine communities throughout the Kimberley region for the past three years, identifying children with skin infections and referring them to the clinic for treatment, as well as working with local services to enhance skin health practice and prevention,” said Associate Professor Asha Bowen, Head of Skin Health at the Wesfarmers Centre of Vaccines and Infectious Diseases, based at The Kids Research Institute Australia.

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There has traditionally been a large gap between the discovery of public health knowledge and its application in practice. With skin infections in remote Aboriginal children among the highest in the world, turning research into a community health message quickly is a high priority.

Skin infections are common, and not always prioritised for treatment. They cause itching, discomfort, disturbed sleep and school absence. If untreated, skin infections can lead to sepsis, kidney disease and rheumatic heart disease.

For these reasons, according to Wesfarmers Centre PhD student Tracy McRae, early intervention – and even better, prevention of skin infections altogether – is the most powerful weapon in tackling these possible long-term effects.

“Our skin plays a vital role in keeping us healthy, so the information gained from the SToP Trial will contribute to the ultimate goal of reducing the number of children and families affected by preventable diseases caused by skin infections,” Mrs McRae said.

“By working in partnership with communities, Kimberley Aboriginal Medical Services, WA Country Health Service (WACHS) – Kimberley, and Nirrumbuk Environmental Health and Services, we’re able to translate research into practice quickly.

“We’re turning our research into community health messages and practices, and training people in the community to prevent, identify and treat skin infections.

“We know that translating research into targeted prevention messages and empowering communities to take a lead role are the key ingredients to create change.”


The above art piece by Bardi artist Luke Riches titled “Gathering Circles” represents the 9 Aboriginal communities that work with The Kids Research Institute Australia Skin Team on the SToP Trial. The circles vary in colour and composition, just as the communities hold their own unique identities. The backdrop of pindan orange and coastal blues convey the land and sea setting that makes the Kimberley so beautiful. The dot painted trails show a connection between the communities, of both foot trails and song lines that unite the people.

Hip Hop 2 SToP video

It didn’t take long for shyness to make way for excitement when a group of children from Dampier Peninsula communities got together last year to make a fun hip hop video with a serious message.

Produced by Broome-based Goolarri Media and led by Aboriginal community members working in partnership with the SToP team, the Hip Hop 2 SToP video focuses on important environmental health messages to keep skin strong and healthy.

Thanks to the COVID-19 pandemic, project consultation, planning, lyric writing and educational workshops all occurred online via Microsoft Teams – a first-time experience for the community and researchers alike.

Children from Ardyaloon (One Arm Point), Beagle Bay, Djarindjin and Lombadina worked with Broome Hip Hop artist Jacob Hamaguchi to come up with the lyrics, which remind viewers to ‘take a shower so you smell like a flower’. The chorus encourages kids to ‘keep their liyan strong’, which means spirit and connection to community.

While co-designing all happened virtually, the SToP trial team received permission to travel to the communities in October 2020 to film the video on country over five days as part of a Woombooriny Amboon Angarriiya Partnership Initiative (WAAPI) youth empowerment camp, designed to build the capacity of our future leaders.

Hip Hop 2 SToP was launched in December 2020 and has since been viewed more than 1,400 times on YouTube.

“We are so lucky to work in partnership with Aboriginal health service providers and community members throughout the Kimberley, and filming the video was a great way to celebrate the vital work we are achieving together to reduce the burden of skin infections,” said SToP Trial lead, Associate Professor Asha Bowen.