The Kids Research Institute Australia Aboriginal Genetics and Health Studies Data Access Committee will consider applications for access to de‐identified DNA variant data generated from studies based at the Institute, including studies carried out in collaboration with The Menzies School of Health Research, Darwin, NT. The DNA variant data available includes data from genome-wide association and sequencing studies. Access to data will be granted to qualified researchers for appropriate health‐related uses.
The data is deposited in the European Genome‐phenome Archive (EGA) and access is by application to The Kids Research Institute Australia Aboriginal Genetics and Health Studies Data Access Committee. Applicants wishing to request access to data from the DAC are asked to complete the Data Access application form and to agree to the terms and conditions laid out in the Data Access Agreement. In assessing applications, the Data Access Committee will consider whether the proposed use of the data falls within the parameters of the consent provided by study participants. The consent form used for studies where sample collection was based at the Menzies School of Health Research is available here. Further information on the application process is provided in the Guidelines and Information document.
Applicants requesting data from studies where sample collection was based at the Menzies School of Health Research will additionally be required to comply with Key Principles and Statements in the Living Protocol drawn up by the Governance Committee for those studies. These Key Principles and Statements are available in the Guidelines and Information document.
For further information please contact Dr Sarra Jamieson on AGHS@telethonkids.org.au.